Laptop-libraryThe Kennedy’s Disease Association (KDA) has identified several resources to help individuals and their families understand and live with this rare neurological disorder. 

  • The KDA is on Facebook provides association and personal news as well as updates and links to information of interest. 

  • Living with Kennedy’s Disease Blog has articles related to living with Kennedy’s Disease, research, and personal stories. In addition, the blog contains plenty of ressources related to Kennedy's Disease. Due to Bruce Gaughran's death, the blog is no longer updated but this doesn't take away the amount of helpful information it contains. 

  • YouTube videos